One Patient's Positive Perspectives

Posts tagged ‘United States’

Lupus and getting back into exercise

One in a string of mornings

This morning was one in a string of mornings when I have renewed my exercise routine in earnest.  It is so easy to forget how refreshing exercise can be when I wake up feeling stiff, aching and sore.  It is just simply counter intuitive to exercise when I hurt!  Once again, my poor memory recalls how much better I feel after just a few minutes of workout.

At the moment, I am slightly sweaty and headed for the shower.  But, I feel better than when I got up!  My breathing is deeper, my pain levels and stiffness are less, joint inflammation is down, and my endorphins are on the rise, pulling up my mood after them.

Increasing exercise to 30 minutes daily

Just a few weeks ago, my rheumatologist asked me how much exercise I was getting, and in honesty I had to admit it was not enough.  I have slipped lately and skipped exercise go too many mornings, and cut my workout time short on most of the days when I do exercise.  Letting myself get caught up in the hurry of last-minute morning preparations, lately my time planning and prioritizing to leave time for this important health priority has been poor.

As we spoke in more detail, my doctor concluded that the 15 to 20 minutes I have spent on my stationary bike a couple of times each week, with only 5 to 10 minutes of gentle yoga some of the other days, was insufficient.  He challenged (or perhaps ordered) me to slowly increase exercise to 30 minutes every day

My response as an obedient soldier in the battle against my lupus? “Yes, Sir!”

My exercise goal due date!

So, the plan is to build my daily exercise time back up by a couple of minutes more each week over three months, and kick up my exercise program a notch or two.  So, that is what I have been up to each morning.

Okay, I have missed a few days since my last appointment, but I am definitely increasing my compliance and doing exercise most days now.  I am up to about 22 minutes and hope reach 25 minutes soon — by the end of October.

In due time the weight will come off, too

My next milestone will be 30 minutes daily by the time of my next doctor visit at the end of November. Working back up slowly is joint and tendon friendly, and helps prevent injury or flare of my lupus arthritis from over exertion.

I haven’t lost much weight yet, my secondary goal, but I have faith that in due time that will come, too (or would that be “go?”)

They say its takes 21 days to make a new habit, and I now am well on my way back to habitual exercise.

Lupus, an Assistant and an Anniversary

Working with lupus

Working with lupus is most manageable for me when I have good clerical support staff.  Recently, my assistant resigned to take a job in law enforcement working for Arizona’s renowned Sheriff Joe Arpaio.  He is an outstanding young man the age of my son, who came to our office from another department through an internal recruitment.  In the short year he worked for me, he proved to be more competent than any other assistant I have had in the past twenty years.

Congratulations were in order.

So, today, three weeks later I am still feeling the loss of such an outstanding employee.  We wished him well, threw a small party to send him off, and were glad to give him support and encouragement as he set out to break into his desired career.

Over the past 3 years when I had similar position vacancies, the recession forced us to fill jobs internally when possible, as we successfully attempted to downsize without layoffs.  Only recently have we returned to public recruitment announcements, and I was able to extend the recruitment for this vacancy to outside applicants.

Without my personal assistant, I have had to divide the duties of the empty position between myself and another member of my staff.  We are both muddling along in good spirits trying to get all three jobs done between the two of us.  I am doing a few things myself that I haven’t done in years, and it is good for me to handle tasks and see exactly what my support staff must do.

Lots to do…

However, my management duties are suffering a little now while I help members of my office carry out the bureaucratic day-to-day duties my missing assistant performed, such as accounts payable and payroll.  I also must set my own appointments and meetings, file my own records and perform previously delegated research myself.  All the while I continue shouldering my normal responsibilities of managing budgets, personnel, and the general operations of our department.

Workload is bogging down a little

I am feeling the professional stress of the extra responsibilities while knowing that other normal management areas are under-addressed. We will be forced to continue operating this way for a few weeks.  Although the economy has improved, it is not yet good enough to justify spending money on a temporary agency for short-term staffers.

But, I will stay sane since am soon going to get a little break.

Taking a little break soon

Today, my husband and I are planning to head out to a neighboring state where I will attend a two-day legal management conference, and then we are spending four more days on a much-needed anniversary vacation.

This weekend will be celebrating 32 years of marriage.  So,  I will be offline for the next week, unless my Nook and I happen to find a few minutes to write a quick blog post at Starbucks.

Lupus and fulfilling my civic duty

5:00 a.m. – a minor system shock!

On Monday morning, I had the privilege of reporting to jury duty at 7:45 a.m.   It was a minor shock to my system having to get up early enough to leave for the downtown court at 6:30 a.m.  I have fulfilled my civic duty several times before, including twice sitting as a juror on criminal trials.  With all my 30 plus years working in Arizona law offices, I am probably the most unlikely juror, but I have concluded after being selected twice, that I must have the “perfect juror” face that both sides of a case want.

So, Sunday night I headed straight to bed. I enlisted my husband’s help waking up in the wee hours of the morning in time to join the morning commute.  Before hitting the road safely, several things were necessary, due to my CNS lupus involvement.   First, a couple of cups of coffee, medications, a shower, and some breakfast, all early enough to make sure I could “connect the dots” between my brain and my reflexes.  All was well, so I had green light to head out to drive to the court safely.

Civic duty

Jury duty is an important piece of our American judicial system, and I am very willing to do my part.  After thirty years as part of the Arizona legal community, there is a high likelihood that I might know the attorneys or have some familiarity with they type of case being tried.  I always hope that reasonable people (like me?) would sit on a jury if the tables were ever turned, and if I were ever accused of a crime.  I would hope the people in the jury box weighing facts and the law would take it all very  seriously, realizing that a real person’s life, reputation, livelihood and family life may be preserved or crushed by their decision.  Such a fate should belong only to the guilty, and Jury duty should remain a sobering, albeit enlightening experience.


Twice, I have been part of a jury that found someone else guilty of their crimes, and those defendants both went to prison.  My prayers going into jury duty were for good health, the desire for a day without lupus pain, and clarity of mind to serve well as a juror should I be selected.  Those of us with chronic illnesses and disabilities like lupus are entitled to an opportunity to take part in this important civil responsibility.

The trials “went away”

When the judge in a previous jury duty stint found out that I had arthritis from my lupus, he made every effort to make sure that the entire jury had frequent enough breaks during the trial to help accommodate my lupus-related needs.  He periodically asked me if I was still comfortable, if I needed a break, of if I needed to get up and walk around for a few minutes.  I don’t think the rest of the jury minded this one bit, as it helped break up the tedium of our 4 day trial a little when we were given chances to leave the court room and stretch.

This time, after half the day of watching a descending list of pending trials “go away” (a not so technical legal term) I was not selected for a trial, and the remaining jurors were released just before noon hour.  So much for the jury duty adventure, this time.  I made my way back to my end of town, to catch some lunch and then head out for a afternoon’s half-day of work at my office.

Lupus, work, pain and joy in my unintentional career

working with lupus was my only option

Working full-time with lupus was inevitably my only option, but in the beginning lupus was a yet unknown issue and I planned to be a stay-home mom.  Early in our marriage was I able to stay home for the years after each of our two children were born.  Much of that time, my husband worked two jobs and reduced his college classes so that I could spend those precious few early months nurturing our babies.  While I was home with our children, I was able to work for a tailor and did alterations at home that bolstered our budget.

We expected that after college, I would be able to continue to stay home until our children went to school.  Things were working out, and we reached a point where we had a modest $10,000 in savings, and put a down payment on a house.  During the month we were waiting for our house purchase to close, our lives took a sudden drastic turn in another direction.

more than house we almost bought

Suddenly, my husband’s asthma flared and became life threatening, and he was hospitalized for several lengthy stays over the next couple of years.  After the first one, we contacted the realtor, and withdrew our offer on the house and started making good faith payments to the hospital, doctors, labs, specialists, radiologists, etc.  Our savings didn’t even touch the mounting bills and was soon gone.  We had health insurance, but it only covered 60% of my husband’s hospital expenses, so before long our medical debts totaled more than the whole price of the house we almost bought.

a poster child for wearing a seal belt

About this time, we had a horrible car accident one July Sunday afternoon on the way home from church.  I became the “poster child” for wearing a seat belt!  Just before the accident, I had unbuckled to take off the little white jacket I had on over my sun dress, and then folded it up on the seat next to me.  Then, as I was reaching for the seat belt to buckle up again, our car broadsided a large sedan in the middle of the intersection.

head-first into the windshield

No one else was hurt very badly, but I flew head first into the windshield and had a whopping concussion, damage in three cervical spine disks, cuts on my face and bruises from head to foot. After the accident, I had numbness in my legs, intense pain in my spine and overwhelming migraines, along with some rocky post-concussion symptoms. I couldn’t hold my neck in a bent position to sew, so had to quit my home tailoring job.  Around that time, my husband suddenly lost his main job.  His health had reached a point of severity that caused severe asthma attacks after mild activity like walking through our apartment.

friends carrying bags of food

To say this was a low point would be exaggerating!  Yet, there were many blessings during these times, too.  We were still living on campus at the college in a small apartment for married students, and our rent, utilities and water were all rolled up into a modest affordable monthly payment.  My in-laws owned a grocery store and brought us boxes filled with meat and groceries each time they came to visit.  Friends showed up at our front door countess times carrying bags full of food.  We were very blessed to receive generous honorariums after we were invited to do a couple of musical concerts at local churches.  The check after the second concert was just enough to pay two month’s rent in advance, and left enough money in our account for about two weeks worth of gas.

We sat down and looked at each other and had a very important conversation, and prayed together about our financial situation.  We mulled over the high priority we both held for my husband to get his degree finished.  We considered his health was not extremely reliable right then.  We thought that even if he could find another job soon (it had been six weeks already of pavement pounding,) his likelihood of  getting sick again was still extremely high.

searching for jobs

Although I had mild arthritis then  (from as yet undiagnosed lupus) and still had intense pain from the accident, I was the healthier one of the two of us.  I couldn’t stand the idea of sitting at home, staring at the four walls of the apartment trying cope with the pain.  I needed a huge mental distraction!  After much deliberation, we decided my husband needed to stay on course and finish school.  We planned to hire a sitter for just the hours he was in classes, and he would study at home with the kids during the rest of the day, and I would out and look for a job.

We sat down together and scoured the want ads to find jobs we thought I could do.  I had a good well-rounded fine arts education, had worked in a hardware store in high school and the library at both colleges I attended, and had done a brief stint in public relations.  I had been the church secretary for two years between the birth of our two children.  Not much to put on a résumé, so we selected places for me to apply where I could drop off the applications, since we figured I might make a better impression in person than on paper.

riding the bus to work

My husband helped me carefully map out each day’s job hunting for the most efficient route to conserve gas.  After two weeks and several interviews, I was offered a job as a paralegal trainee at a downtown law firm.  We were so excited, and saw this as an answer to our prayers and our needs.  I was able to take the bus to work, and we were grateful that our gas and remaining funds lasted just until my first paycheck came in.

Although I was hurting intensely from the accident, I could still think, and found that going to work and focusing mentally on the cases was an excellent distraction from the pain.  We lived right on the bus route, so, I got up every morning at dawn to ride the bus for over an hour to get to physical therapy and neuro-rehab at 7:30 a.m. at a hospital by my office.  I started work an hour later each morning, and for the next two years, I was in physical therapy and neuro-rehab for my spine every day at first, and then slowly tapered down to once or twice  each week.  At night, I often reviewed cases for an hour commuting home on the bus until sunset, when it finally reached the stop in front of our apartment.

studying law books on the bus

Over the next a half-dozen years, I studied law books on the bus and worked in three firms as a paralegal before taking my current long-term job in a government law office.  Each of the four law offices I worked in brought diverse experiences in different types of law, with increasing pay and better health insurance benefits.  The health insurance helped us pay for the medications and specialists that stabilized my husband’s health and saved his life. By the time our children went to grade school, my husband had finished college, but for a few more years, his asthma was still extremely life-threatening.

Eventually, my husband was strong enough to get back to work, but for the several years that passed before that, my paychecks kept a roof over our heads and shoes on our children’s feet.  It took seven years, but without declaring bankruptcy, we paid off the massive medical bills and got out of debt.  I like to describe that experience as “paying off a house without having a house.”  We were just thankful to have the means to meet our obligations.

lupus gradually worsened

Over the next few years, my lupus gradually worsened, and my husband’s health improved.  Our health situations became somewhat reversed.  New asthma medications came on the market that radically controlled the severity of his asthma and he became “the healthy one.”  We have been grateful throughout the past twenty years that the government lawyers I work for have always made outstanding accommodation for my lupus, and helped make it possible for me to continue in my job successfully.

I guess, there are several reasons I continued working: I like my extremely rewarding job, I need a paycheck, we need health insurance and prescription coverage, I have a public service retirement and can boast about an amazing team of co-workers.

inherited asthma

My children are now grown, but one of them and one of my grandchildren have the asthma they inherited from my husband.  We are both thankful for a new day in medicine, and for today’s drugs that control the severity of both asthma and lupus, and make a life-saving and career-saving difference for my husband, me and the millions of others with these chronic diseases.  We are thankful for the employers who provided the insurance we needed to be able to afford our doctors and medications.

Now, the Benlysta infusions I receive for my lupus costs my self-insured government employer more each year than what they pay me in salary.  I am a grateful employee!  Right now, I often think about the fact that I really have to keep working to keep getting my infusions.  The jury is still not “in” about biologic drugs for lupus, and how coverage for it will fare in in what medicare, retirement health insurance plans, etc. will pay.

working with pain strengthened me

It was difficult when I was younger to go to work every morning when my lupus caused high levels of pain.  But, going to work with pain toughened me up.  I was motivated by the knowledge that was providing for three people I love who were counting on me, because at that time in our lives, they could not make it on their own.  Yes, it required sacrifice, but I would do it all over again in a heartbeat.  God provided the means and the gumption I needed to go to work in pain.  When I asked for His strength to sustain and support me, He daily answered my  prayer.  When lupus worsened and caused daily physical pain, the means of coping was already established because of what I had learned from coping with the results of my accident.

Over the years, I learned that I could get up and be productive, despite how I felt. In the midst of the hardest moments, I have usually remembered to ask God for his help and for him to loan me a drop of His strength. I have learned over the years that joy in life does not have to depend on how you feel physically.  Feeling good is helpful, but it doesn’t have to be the thing that determines fulfillment and deep joy.

using the retirement fund

Someday soon, I hope to be able to stop working and draw on the retirement fund we have built up over the last couple of decades.   Then, I hope to work part-time teaching music.  From the beginning of my “unintentional career,” working with my lupus was the only option.

As my lupus became more severe, and my health benefits got better, I did the math.  I also continued working to continue the means to pay for the medicines that keep my husband and me healthy  enough to keep working and living.

Lupus and the best of the red, white and blue!

Today, we celebrate freedom!

Today, in the United States of America we are celebrating a national holiday, the anniversary of the declaration of our independence as a nation.  Our exceptional country, founded as a nation that protects personal freedom and liberty for all citizens.  I am, without excuse or apology, both a lupus patient and a patriot!  As a lupus patient, I also celebrate and thank God for many things in our country that impact lupus patients positively.

Many things together have helped make our country the most favorable place in the world to live as a lupus patient, and these all contribute greatly to the health and quality of treatment of people with chronic illnesses, such as lupus:

Best of the red, white and blue!

  • Available medical care from the best system of well-trained doctors in the world
  • Liberty to choose which doctor I will visit and choice to see any doctor on my health insurance plan, or to pay extra if I can afford it to see another doctor or specialist of my choosing
  • Protection from discrimination due to illness or disability, protection for my medical privacy, and protection of my job when lupus interrupts my ability to work through laws like the Family Medical Leave Act, the Americans with Disabilities Act and the Health Care Insurance Information and Portability Act
  • Drug companies that offer programs to pay the co-pays and drug costs for patients that need help
  • Bankruptcy laws that protect me from financial slavery in the event I cannot pay unexpectedly huge medical or other bills
  • Social Security and Medical Care funded by other taxpayers for persons who are unable to work because of disability
  • Open access to public libraries and internet medical information sites provided free of charge
  • Attorneys in our legal system that aid patients with navigating the disability application process, and are paid only if and when they help secure a patient’s benefits
  • Lawyer’s professional ethics requirements that they donate a certain percentage of their work to people who cannot pay for their services, such as underemployed or unemployed lupus patients or others with limited resources
  • Special parking laws, placards and plates that give close access to buildings for disabled persons and require wheelchair access everywhere
  • Communities all over our country that fund no-cost or reduced-cost transportation for disabled citizens
  • Major retail corporations and pharmacies that willingly offer lists of hundreds of common medications at low ($4 to $5) costs
  • Tax exempt status for non-profit organizations such as The Lupus Foundation of America, and its many local chapters that support lupus patients, lupus research and support services and for lupus patients, by encouraging benevolent tax-free giving by citizens and corporations
  • Federal and state tax laws that give deductions for high medical treatment and transportation costs

Celebrating our precious freedom to vote,
and to exercise our will as a people!

And lastly, I celebrate the wisdom of the voters in all of our great states, who watch the ongoing decisions of their elected representatives.

We cast our ballots in local and national elections and exercise our liberty to check any failure to represent our wishes.

We have the recurring ability as voters to correct any dangerous or uneven balances of power that could harm our freedom or well-being as citizens of this great nation.

God bless the adventure of freedom in our great nation!

God Bless America!

Lupus awareness blog adventure – 62 posts in 62 days!

Wow! Yesterday was the last day of Lupus Awareness Month, May 2012 and was also the 62nd consecutive day of Lupus Adventure blog posts.  31 posts in May about 31 Lupus Facts, followed April’s 30-day health blogger writing challenge.  I wasn’t sure I could do it, but here we are, starting the month of June with 62 consecutive posts behind us adding to the ongoing Lupus Adventure.

Lupus Awareness Month in retrospect

The result?  Not exactly world peace, but how about increased global lupus awareness?

Each year, Lupus Awareness Month is the centerpiece of the global lupus community’s annual grassroots effort to raise lupus awareness, to support funding for lupus research, and to support the estimated 1.5 million Americans and at least five million people worldwide affected by lupus.

Blogger lupus awareness efforts

During May 2012 a record 5,000 readers from 98 different countries were welcome visitors to this blog and joined in the Lupus Adventure.  The visitor numbers don’t even include the 450 hits filtered out by spam-blocking software.  There were many new readers from large and small countries on every continent. The reach of the Internet is simply astounding! The interest displayed in lupus awareness was heartening!

Additionally, other lupus bloggers and lupus awareness advocates were undertaking diverse efforts all over the globe to promote lupus awareness.  Everyone stood up on their own virtual soap box, and caused the many voices of lupus be heard around the world!

North and South American lupus awareness activities

Members of the Lupus Foundation of America National Network of local chapters, branches, support groups and affiliated groups conducted countless events during May 2012 observing Lupus Awareness Month in the states of Arizona, Arkansas, California, Colorado, Connecticut, Delaware, District of Columbia, Florida, Georgia, Illinois, Indiana, Kansas, Maryland, Missouri, New Jersey, New York, North Carolina, Ohio, Oklahoma, Pennsylvania, South Carolina, Tennessee, Texas, Utah, Vermont and Virginia.

Other activities in the western hemisphere included meetings, symposiums, celebrations and other lupus awareness activities in the countries of Argentina, Bermuda, Bolivia, Brazil, Canada, Chile, Ecuador, Grenada, Mexico, Paraguay, Peru, Puerto Rico, Uraguay and the West Indies.

Raised Global Lupus Awareness

Here are some noteworthy highlights of well-coordinated earth-spanning Lupus Awareness Month efforts undertaken during May 2012 that broadcast helpful and reliable information about lupus:

World Lupus Day – As part of Lupus Awareness Month activities, World Lupus Day was observed on May 10 — a day when the global lupus community rallied to bring greater attention to this terrible disease.
Africa – In the Republic of Mauritius the World Lupus Day 2012 poster was released to the media and displayed as posters in all public hospitals, private clinics, secondary institutions and other public places.

Asia – The Lupus Foundation of Bangladesh hosted a World Lupus Day Rally Event at the TBIRDEM Auditorium, in Shahbag, Dhaka, Bangladesh from 9:15 am to 1:30 pm. Activities included a rally chaired by President, Professor M N Alam and the Bangladesh Rheumatology Society, and organized by the Lupus Foundation of Bangladesh (LFB.) The day’s events also included a lupus awareness lecture by Professor Syed Atiqul Haq, Chairman, Dept of Medicine, BSMMU with Approx 150 guests including patients, families, well-wishers, physicians, researchers, and media, corporate, government and other representatives.

Indonesia – 2012 World Lupus Day activities included a live event on May 5, 2012 offering free medical lupus consultations, a Lupus Awareness and Education talk show; a performance of “Beautiful Indonesia”; a book launching for two new titles “Sunrise Serenade” and “Luppies Diary”; a bazaar and the 2012 Care for Lupus SDF Awards Presentation.

Australia – World Lupus Day celebrations were held in the Lupus Shop on 1/24 Station Road Indoooroopilly, in Queensland on May 10th.

Europe – The Lupus Europe organization provided Lupus awareness posters and themed artwork for all 23 lupus groups in 21 member countries for a unified European public information campaign and World Lupus Day activities, incorporating the theme “Make Lupus Work.”

Belgium – The Belgian CIB League World Lupus Day event was held on May 10th at the Gasthuisberg Hospital in Leuven, and at four hospitals in the South of Belgium with lupus workers manning an information booth, answering patient and visitor questions and distributing lupus awareness materials. World Lupus Day posters were posted in public places, doctor’s offices, and pharmacies all over Flanders.

Cyprus – the Cyprus League Against Rheumatism celebrated World Lupus Day with a lupus wellness workshop at the Hilton Park Hotel in Nicosia, Cyprus on May 12th, and distributed materials with practical information and advice about life with lupus. Lupus advocates published articles in the local press and participated in radio and TV programs about lupus.

Denmark – The World Lupus Day events included topics about student and work life, new treatments influencing education and career choices and a special “Know your lupus” – educational program presented by lupus patients.

Estonia – Estonian Rheumatism Association had “Life with Lupus” published a special edition of the Estonian Rheumatism Association monthly e-newsletter dedicated to the subject of lupus, published a booklet „My Life with Lupus“, and distributed monthly e-newsletter and patient booklets to patients and health care workers.

Germany – The Lupus Foundation of German hosted the 3rd German Lupus Day on Science, Dresden Conference on SLE and medical symposium for lupologists, rheumatologists and other professionals, and awarded an annual research prize on May 11 – 12, 2012.  Also,  the Wonder of Arts II, Bayreuth Benefit concert in aid of the Lupus Foundation Germany was held on May 12, 2012 at 7:00 pm, a nationwide balloon campaign “40,000 balloons for 40,000 lupus patients in Germany” was held throughout Germany all through May, 2012, and LupusCrossing, and a world-famous postcard project  started on World Lupus Day 2009, with 325 butterfly cards received from all over the world to raise awareness for lupus and to show support for lupus patients.

Hungary – The Gabriella Schopper Hungarian Lupus Group celebrated Lupus Day on May 13, 2012 in Safari Park in Budakeszi and at Tropicarium zoo park in southern Budapest.

Ireland – Lupus Group Ireland is preparing to launch a brand new interactive lupus website on with 24/7 support for Lupus Patients, patient stories, lupus medical information and a flash chat lupus question forum. LGI also unveiled their new innovative Android game application “Lupie,” in a question/answer educational game format.

Italy – Lupus Italy held a World Lupus Day Celebration on May 12 in Bologna with the National Congress of the Italian Lupus Association, on May 19th in Firenze at the Florence Lupus Clinic, and held lupus awareness activities in Catanzaro and Benevento on May 5-6, in Napoli on May 19, and in Sassari on May 19th.

Netherlands – VNLP held a conference for Lupus patients on May 12th at Partycentrum Het Vechthuis in Utrechtconference discussing developments in lupus treatment and announcing the winner of the researcher/clinicians Award for 2012.

Spain – The Spanish Lupus Federation and the Spanish Lupus Association of Cantabria celebrated World Lupus Day celebrating the XI Edition of our National Congress on May 4/5th in Santander, Spain in a 2-day conference and promoted the magazine “LUPUS ESPAÑA.”

United Kingdom – Lupus UK members emailed and text messaged “Today is World Day…” to 10 people that they know who do not have lupus. Schools all over the UK held events promoting World Lupus Day, and distributed lupus awareness posters and bookmarks to students.  LUPUS UK members distributed posters, and many changed their online profile pictures to butterflies to help raise awareness and promote questions about lupus.  News & Views (a national magazine in the UK) devoted 1½ pages of an issue to World Lupus with feature articles about UK World Lupus Day activities.  The St. Thomas Lupus Trust hosted The Joy of Living Concert on May 10th celebrating World Lupus Day at the chapel at Guy’s Hospital  in London.

Ongoing lupus awareness

May 2012 was an excellent opportunity to promote lupus awareness, partnering with many diverse groups of patients, families, friends and members of the medical community worldwide.  Lupus is still incurable, but increased lupus awareness will lead to earlier diagnosis and treatment, thereby lowering mortality and reducing the destructive effect it can have in the lives of those affected by lupus.

Thank you so much for your part in joining in the lupus adventure with me during May 2012  – Lupus Awareness Month!


Lupus Adventurer

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