One Patient's Positive Perspectives

Posts tagged ‘brain fog’

Lupus Adventures through Three Foggy Mornings

Three Foggy Mornings

Looking at morning through drifting Lupus fog... sunshine in my soul today!

Fog at awakening

Thick blinding fog at awakening,
a cloud seems to fill all my room.
Fog starts to rise with my breakfast, and then,
a little bit more while I groom.
Exercise chases away some more mist,
and my neurons are beginning to click.
Starting to feel like a human again,
encouraged, today I’m not sick!

CNS symptoms

Murky fog just won’t clear

Not every day works according to plan,
on the days murky fog just won’t clear.
Fogginess lingers, hanging heavy and dense,
taking away inclinations of cheer.
Those days are distinctively slower and rough,
mere thinking is especially hard.
Schedules abandoned and work set aside,
“going out” becomes a stroll in the yard.

Faith finds a way

Faith finds a way

And then there are days faith finds a way
to rebound before it becomes noon.
A half-day is better than losing the whole,
spent redeeming the whole afternoon.
Heading out late, not truly uncommon,
at least not for auto-immune me.
Trusting the Lord, begging daily for grace,
past the foggiest morn — I can see!

by Lupus Adventurer
Copyright January 2014

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Lupus Teleconference on Conigitive Dysfunction and Lupus Brain Fog

Upcoming Lupus Teleconference

Upcoming Lupus Teleconference

I would like to heartily recommend this FREE April 18, 2013 teleconference to my blog readers.  Although I will be on an airplane flying home to Arizona from the east coast on the day of the conference, I hope to be able to look it up on the Lupus Foundation web site to download the recorded version and transcript afterward.

Perhaps, I will even be flying through real clouds and fog, instead of the lupus brain fog that I experience so many mornings with my own lupus.

I urge you to register by following the link below if you would like to learn more about cognitive dysfunction and lupus brain fog, from an expert on the subject.

Sincerely,
Lupus Adventurer

Information about the seminar from the North Carolina chapter:

Lupus: Ask the Experts  is a series of live educational teleconferences and pre-recorded webcasts on a variety of topics designed to give you important information about living with lupus. Don’t miss this opportunity to learn from some of the world’s leading lupus experts from the comfort and privacy of your home. Participate in several or just the one that most interests you.Live teleconferences last one hour and are accessible via a toll-free number. Teleconferences will also be recorded and posted online. Pre-Registration is required.  Call-in/log-in information will be provided to all registrants one week before the event.

COGNITIVE DYSFUNCTION: THE LUPUS FOG

Thursday, April 18, 2013 from 7:00 PM to 8:00 PM (EDT)

Michael Parsons, PhD Cleveland Clinic

As many as half of all people with lupus describe feelings of confusion, fatigue, memory loss, and difficulty expressing their thoughts. This collection of symptoms is termed cognitive dysfunction. Learn more about “lupus fog”, its symptoms and treatment options.  Register by Thursday, April 11th.  Click Here to Register

This Ask The Experts series is offered as a free service of the Lupus Foundation of America, North Carolina Chapter.  All costs of services for patients and families are underwritten by the fundraising efforts of the North Carolina Chapter, including the Walk to End Lupus Now™The Lupus Foundation of America, North Carolina Chapter is proud to be a source of information about lupus.  Our comments are based on professional advice, published experience and expert opinion, but do not represent individual therapeutic recommendation or prescription.  For specific information and advice, please consult your physician.

Post holiday care for a major lupus flare

A few indulgences, with moderation!

Happy birthday, sweetheart!

Awaking on my birthday the morning after Christmas, my husband was plying me to enter the morning with fresh brewed coffee.  What could be better at 7:00 a.m. than fresh gourmet java?  After greeting me with a sweet good morning kiss and “Happy Birthday, sweetheart,” he agreed to my groggy suggestion of where he could find the Christmas leftovers to take with him to work for his lunch.

Soon, he had headed out to work while I sipped half of the hot cup of coffee, and after setting down the partly finished cup, I rolled over and snuggled into my pillow to catch a little more sleep.  After all, I was entitled, it was my birthday!  One more hour would be just what the doctor ordered for my groggy grey matter.

Repeated steroid treatments

Going for the steroids

Five hours later, I stumbled out of bed toward the kitchen, gasping when I saw the clock face on my stove read 12:07.  I had slept until noon!  The only trouble with sleeping in was that I was supposed to have been to work by mid morning, earlier than it was by then.  I stood there for a moment, and was in a deep state of mental cloud with whopping all over lupus symptoms. I was I the middle of a major post-holiday flare of my CNS lupus.  A not so welcome birthday lupus adventure!

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Downed meds with more coffee

I went straight for my morning meds and some extra prednisone, downing them with a cup of fresh brewed coffee from my new Keurig coffee maker.  While it might seem like I should have been fully rested after fourteen hours of sleep, I was everything but refreshed.  I felt completely exhausted!

Back to my data confused

a quick email to my boss

I sat down at my desk and wrote a quick email to my boss explaining the all too clear truth, and set out to quickly recover the rest of my birthday and work day.

Within just over an hour, I arrived at my office but was still stumbling mentally through my responsibilities.  I had brought goodies with me to share with the skeletal group who staffed our office in the days between Christmas and New Years, and they helped me indulge in my favorite triple berry birthday pie and a plate of Christmas sugar cookies.

Except for the three high points: my husband’s good morning kiss, co-worker birthday greetings and berry pie, it proved to be one of my toughest half work days in recent history due to the extreme activity of my lupus, attacking brain, joints, and just about every other part of me.  My evening however ended on a high note, as I arrived home to a message that the kids were bringing home dinner.  We shared a quiet birthday take-out dinner from a local pizzeria with my husband, daughter and son-in-law.

Celebrating Lupus Awareness Month, May 2012

Taking care of lupus flare

Each morning since, my lupus symptoms have been a little lessened, and each day I have dropped the prednisone dose by a couple of milligrams.  It will take a couple of weeks to get back to my normal five milligrams per day maintenance dose.  Although I have ambivalent love/hate for the steroids, there is no choice but to take them when my lupus flares that severely and suddenly.  The only real option is to burst with prednisone to take care of that kind post-holiday lupus flare.

Unfortunately, the extra sleep had not been enough to prevent it, but a timely burst of steroids can shut it down.  I am grateful my doctor prescribes extra prednisone for me to have on hand for quickly controlling flares just like this.

Lupus patients and the things we forget

Forget-me-not my stuff!

As a lupus patient, it was  relief to finally have a reason for my flawed short-term memory.  There is a great blog all about forgetting things, that casts a humorous glance at the challenges of remembering simple things on Post-it-Note posts at http://thingsweforget.blogspot.com/.  Today’s health writer’s challenge suggests making a post-it-note of my own, to remind me of the stuff I need to remember every morning before I head out the door to go to work.

I would have to stick this note on the corner of the kitchen counter closest to the side kitchen door.  So many times, I have sat down in my car and started it up, just to turn it off again to go back in to get one (or more) of the things I forgot.  More times than I want to admit I have even gone back  and forth between the house and car four or five times.  On  those days I was really glad everyone else was already gone, so no one else could watch my exasperating ping-pong trips in and out of the house!

What was the most embarrassing, un-fixable thing that I had to put up with for the whole day because I forgot it?  It was my laptop computer!  Most Fridays, I telecommute from home, and take my laptop out of its docking station at work and bring it home with me for the weekend.  I was embarrassing (yes, it has happened more than once) to I realize that my docking station was empty, and my laptop was at home on the desk in my office.  No laptop, no work!  Try explaining that one to your boss… ouch!

So, here’s my Post-it-Note to myself …
What would be on yours?

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