One Patient's Positive Perspectives

About the Adventure…

The adventure is… between the lines!

This is about an adventure. Its hard to think of a health problem, like having Lupus, as an adventure, since an adventure could be confused with sounding like such a positive thing.  But, this is an adventure, and where an adventure takes you depends partly on the decisions and friends you make along the way.

I have a great Guide and some amazing companions in my adventure:  my Savior the Lord Jesus Christ, my husband and the love of my life, my two children, their spouses, my grandchildren, extended family, outstanding physicians, nurse practitioners, awesome and understanding bosses, supportive co-workers and some very precious friends!  I am blessed with a great company of encouragers going along on this adventure with me.

Walking in the rain…

Some things, like rain that falls during your travel, are just part of the adventure.  The rain will surely get you soaked, but whether that is a good thing, or a bad thing, depends on sometimes on how you look at it when the rain is falling.  Sometimes, it also depends on whether your remembered the umbrella!

My mother is no longer around to be part of this adventure with me.   But, she is the one who taught me to look out the window at the San Francisco rain and say with glee, “put on your rain coat, get your rain boots, grab the umbrella!  Let’s go for a walk in the rain!”  So on many rainy afternoons, we would do just that.  We would don our rain gear, set out walking arm in arm, singing and laughing as we strolled, making the most of a glorious rainy day!

Grab your umbrella!

Join the journey, and see where it goes… come along with me and start singing in the rain!

“The joy of the Lord is my strength.” Neh. 8:10

~~ CONTACT INFORMATION ~~

Please feel free to contact me by email with comments, questions, suggestions or topics you might like to see in future blog posts:

LupusAdventurer@cox.net

~~ FAMILY – CHILDREN FRIENDLY LANGUAGE DISCLAIMER ~~

Since it is my goal to keep my blog a place that is language appropriate for even the youngest lupus patients, please be advised that all forms of profanity will be edited out with # signs any time they are included in user names or comments posted on this blog.  No offense is intended to the commenter in any way, but rather this will be done an attempt to keep profanity filters from keeping young lupus patients from being able to read content here that might be helpful to them.

In addition, please be advised that any content of a subject matter otherwise commonly understood as inappropriate for youthful lupus patients may be moderated and/or deleted in whole or part from comment postings, based on my sole judgment.  Anything beyond PG13 content will be automatically blocked from posting to my site, or removed after posting.  Anyone should feel welcome to express their comments freely, with the understanding that these language guides will be applied to specific forms of potentially offensive language in their posts when appropriate.

~~ LEGAL DISCLAIMER ~~

Please understand that the author of this blog is a lupus patient and as such, does not represent herself as a medical professional.  Every attempt is made within this blog to refrain from offering medical advice, but rather, to suggest patients speak with their own physicians for medical advice appropriate to their personal medical needs.

The ideas presented here are strictly those of the author, based on her own life experience in dealing with life as a lupus patient, now blogging publically here under the name “LupusAdventurer.”  All rights are reserved.

Every attempt has been made to respect all applicable copyright laws and regulations and to prevent infringement upon the rights of other authors, and to make appropriate citations to quotes or references of others authors’ intellectual material.

~~ AWARDS & RECOGNITION ~~

Comments on: "About the Adventure…" (16)

  1. Hiya LA! I have met so many wonderful people with lupus I share a kindred spirit with. They have enhanced my life in many ways. I’d be missing out without them and am grateful for the path that led me to them, even if the path is lupus. 😉 Julie

    • It is always so great to hear from you Julie… you are so right about the upside of lupus we cannot change. You and I still need to meet, neighbor! If you will send me an email with your contact information at lupusadventurer@cox.net and I would like to give you a call. LA

  2. Thank you! Discovered your blog today and wow! Love it and the perspective you take on our journey. Plus I agree with previous comment, your posts are just right. Please keep it up. I just signed up for the mailing list and I look forward to reading more.

    • Laura: Thank you so much for your kind and encouraging comment. Sometimes it really boosts and motivates me to hear from readers who are affected positively by Lupus Adventures. It is YOU I am writing for. Thanks!! LA

  3. L.A., I look forward to your blogs. They are just the right size (this one is too long and that one is too short) and they inspire me to go on with my blogs and videos. You truly “get” what it is to capture how we feel with lupus and your tips on managing this condition are truly helpful. Thank you for all you do to promote awareness!!! Sincerely, Julie

    • B: Thank you so much for your encouraging support of my commentary about the adventure we share. I am grateful for any bit of help my journey can be to those who find their way here. LA

  4. I’m so enjoying reading your blog! Your outlook is very refreshing! I was diagnosed with lupus in January of this year, diagnosed with autoimmune hepatitis in June 2008. It has most definitely been an adventure. My rheumatologist wants to start me on rituxan infusions next month and I found your blog while googling for info on rituxan. Thank you so much for sharing your experiences!

    • Cindy: Thank you so much for visiting my blog and taking the time to drop a line and let me know what you thought about it. Please feel free to drop me a line about any questions you might have, and make sure to visit the Lupus Foundation of America web site and save the link. They are the definative source for accurate timely information about lupus. You can check to see if you have a LFA chapter nearby, and you might be able to connect with some other lupus patients. It can be a great encouragement to know you are not alone in facing an otherwise very invisible disease. Hang in there and please drop by from time to time to let me know how your treatment is going. LA

  5. Wow. I just stumbled upon your blog, and was truly inspired by your incredible outlook on life! Thank you for sharing your adventure with the world!

  6. My goodness – so positive of you to be able to blog about your illness. I wish you the best and hope your treatments are helping. I am not familiar with Benlysta so I guess I better read up on it.

    • lupusadventurer said:

      Thank you so much for your visit to my blog, and taking the time to leave a nice comment. I see we have kindred interests in biking (although mine is inside on a fluid trainer out of the UV/sun or only at sunrise/sunset,) crosswords and positive approaches to health. I would be honored any time you would want to chime in with helpful comments on any medical issues on my blog. Thanks!

  7. lupusadventurer said:

    Diva: Your kind words are an encouragement! Thanks for visiting my blog 🙂

  8. Thank you for sharing your perspective and for creating such a great and resourceful blog. I hope to one day be as helpful as you are! Your efforts are very much appreciated. (PS- thanks for your support and lovely message!).

  9. maurice said:

    Can’t see your contact so hope this will suffice?
    Do you want to link with us?

    Hi
    As we are both in the Health Related newsletter or blog, would you be
    interested in
    linking with me in both my newsletter and blog on Healthy Eating?
    http://mauricetudor.com/Power10Action-Group/HealthyEatingNewsletter.htm
    And
    http://mauricetudor.com/Power10Action-Group/healthyeating

    This would be advantagues to both of us in getting more readers and
    subscribers.

    Reply to the above address please

    To your Health

    Maurice(UK)

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