Every four weeks, month after month for almost four years now, three to four hours of each month has been devoted to an infusion chair. Doing a little mathematics reveals that a little shy of 200 hours have been invested in Benlysta (belimumab) infusions for lupus. As medical milestones of each month, they are helping subdue and manage the impacts of lupus. Before lupus, the threat of quitting work due to early disability retirement loomed ahead, but the powerful work of this relatively new biologic drug reversed that.
With the return of greater ability to enjoy challenging adventures, quality of life is improved. Intensity of lupus signs and symptoms have dramatically decreased over time, although the benefits were slow to show up in the first few months. The first few months showed little change in lupus severity, but during the next few months that followed, symptoms decreased, pain lessened, and flares began to be shorter and less frequent. During the second year of taking Benlysta, overall health and strength gradually improved. Now, after almost four years, the infusions continue and keep lupus in manageable check.
- Signs and symptoms of lupus seem to increase during the week before my infusion.
- After Friday infusions, extreme, bone-tired fatigue lasts through each weekend.
- Immune system remained strong, if not better
Benlysta may be a great option for many lupus patients, may be just what their doctor ordered! As for me, I thank God daily for the help and control of my lupus it continues to give.