One Patient's Positive Perspectives

CYBERSLATE - WIN_20150512_085910

Breakfast of Lupus Champions @TiffanyAndLupus @LAlupuslady @LeslieRott and @LupusAdventurer (taking pix)

Sharing stories and coffee we nibble and smile,
while catching a quick bite to eat.
All kindred spirits fighting for health,
if only our foe to defeat!

We strive and endeavor to get the word out
and tell anyone who will hear
Awareness of facts each person should know,
information to replace their fear.

WP_20150512_001Each of us bloggers and advocates strong,
we gather with purpose as one,
We’ll talk and discuss issues we know so well,
informally we’ve already begun.

A few minutes later we join all the rest,
in the summit we’ve come to create,
With meeting of minds, a free flow of thoughts,
and messages we each came to state.

For just a few hours, we gathered together,
a great combination of voices we were,
Relationships strengthened in this rare adventure.
If only there could be a cure!

Short of that miracle, so much can be done
through research and tireless care,
Joining perspectives and wisdom diverse
by patient advocates with personal flare!

Our voice will be different, more united and strong,
after meeting together today,
What once was just virtual has leapt into life,
after meeting in this wonderful way.

Encouraged and enthused, still striving on
to reach out to every life we can touch,
Advocating, writing, and partnering together.
Alone, we could never do as much!

Lupus Adventurer
© May 2015


Edited in Lumia Selfie

Lupus Adventurer and Sarah Gorman at GSK Lupus Summit

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Leslie Rott @LeslieRott

#GSKsummit Lupus Summit

#GSKsummit on Lupus @shanelleG @LeslieRott @LAlupuslady @LupusAdventurer @cmswrites @TiffanyAndLupus @marlajan @despitelupus

A very special thank you goes out to Glasko Smith Kline for sponsoring the May 12, 2015 GSK Summit on Lupus — #GSKsummit , and inviting  lupus bloggers to join in this precedent-setting lupus event. Note to Reader: GSK provided reimbursement for travel and expenses to attend the GSK Lupus Summit.  However, this post is voluntary, represents my own views and I was not paid to write it, nor asked to promote GSK or its medicines.

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Comments on: "Lupus Adventures in Advocacy with Lupus Sisters" (4)

  1. It was so nice to meet you at the summit. Thanks for sharing your experience of it. You got my Twitter handle right but my last name is Rott, not Roth.

    • Leslie… so sorry about that! Thanks for letting me know, I fixed the problem and realize there is always a greater risk of errors writing on a small mobile device. It was great meeting you and participating in the GSK Lupus Summit with you!

  2. Brenda L. said:

    Great poem! I hope all is going well at the summit! Hugs, Brenda

    • Thank you so much, Brenda! It was a great privilege to have the opportunity to help advance lupus patient concerns and perspectives with people making such a difference in finding treatments, and someday, maybe a cure. LA

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