One Patient's Positive Perspectives

SLE Patient Survey “UNVEIL”

UPDATE 3/18/2014: The patient survey was recently expanded in include several hundred more lupus patients.  If you checked and it was closed, try again.

NEWSFLASH:  Catch it fast, if you want to help lupus research and make a couple of dollars at the same time!  I don’t usually post twice in one day, but this was important enough I wanted to make sure and get the word out.   A new Lupus Foundation of America Research Project can earn you a little fast cash, while helping with about how lupus impacts our lives.

SLE Adult Patient Survey – 45 Minutes = $50 Visa Gift Card

This survey focuses on adults diagnosed with systemic lupus erythematosus. Patients with only lupus affecting their skin (cutaneous lupus/discoid lupus) are ineligible for this survey, because they are studying issues unique to systemic lupus erythematosus.

The new LFA online survey is seeking 500 lupus patients over 18 years old to answer questions about their lupus in a confidential survey.  The survey’s goals include understanding the patient experience with lupus, their symptoms, treatments, health care costs and the impact of lupus on patients lives.  Each participant that completes the 45 minute survey will receive a $50 Visa gift card.

Find out more at the link for the LFA Unveil Survey.  I took the survey and it was painless, and it was simple to do!

Caregivers of Adult Patients with SLE Survey – 15 Minutes = $30 Gift Card

teddy bear and butterfly

Caregivers of Lupus Patients

A second counterpart survey relates to caregivers of lupus patients.  This survey only takes about 15 minutes and will survey about 250 caregivers across the United States. LFA is looking for participants who are 18 years or older and are caregivers of an adult (18 years or older) who have been formally diagnosed with systemic lupus erythematosus (but not patients with only cutaneous lupus.)

Learn more about this survey at the Link:


Comments on: "Survey UNVEIL Understanding the Impact of Lupus" (3)

  1. Thank you so much it was fun and easy sharing! I received my card today!

  2. I took the test. Very interesting. Thanks for sharing.

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