One Patient's Positive Perspectives

Blogs of the Day – May 18, 19, 20, 21, 22, 23, 24, 25, 26, 27?

Case of the Missing Daily Posts?

First, thank you so much for the email checking on my well-being and whereabouts! Today, this post skips right over the past week from May 18 and the eight days in between to today, the 27th!

A post for May 18th almost was published, but during the “save” process, WordPress glitched and went into the “cyberspace hereafter” unsaved and lost in a digital abyss forever.  Mental fragments of that once well-intended “almost-post” await resurrection, but not today.  Maybe, it will be born-again tomorrow.   (Religious metaphors somewhat intended!)  Alas, I didn’t even have time after that to mourn my loss until today.

The lupus facts that were intended for each intervening day follow at the end of tonight’s post.


Project Phase One – Due Now!

A Long Weekend’s Toil Burning Late Midnight Oil

Whew!  What a challenging week-plus it has been.  Consuming work on phase one of a large personnel classification and compensation study project filled last weekend with massive amounts of analytical writing under short deadlines due last Monday.

Telecommuting internet connections failed at home, so, in frustration, my weekend project work moved back to my office across town.  A week ago, after living there nearly around-the-clock nearly all day and night Friday, Saturday and into the wee hours of the morning last Sunday, the first project hurdle was finally completed.

starbuck cup

6 a.m. Sunday Morning

Leaving my office just as the sun came up last Sunday morning, the Starbucks near my office was just opening at 6:00 a.m. Some coffee to drink on my exhausted drive home sounded like a wise plan.  At that early hour on Sunday morning, the freeways were empty and it was a short trip home, hitting the road well ahead of  Sunday morning church goers.

Arriving home just as my husband donned his suit and tie for church, he tucked me into bed with a kiss and a one-word admonition, “Sleep.”

Sleep, Sleep and More Sleep

Sleep indeed came quickly and deeply, and slumber lasted for hours through normal time for breakfast, Sunday School, and morning church services, and extended on into the late afternoon.  Waking just in time to attend the choir practice and the evening church service with my husband, at least some of our normal Sunday routine was restored.

After evening church, I went right back to bed to invest in more much-needed catch up sleep.  Monday morning would come extra early, with project phase two awaiting at my office for immediate attention.

Project Phase Two is Finally Through,r:72,s:100,i:220&tx=66&ty=-145&biw=1600&bih=646

Headed back to work
early Monday morning!

Then, the next phase of the massive class and comp project continued on Monday morning, taking all week to complete before all the last approvals, edits and last touches were done.  The second hurdle was at last finished, signed, sealed, input online and delivered at 9:00 p.m. Thursday night this week.  It seemed there were no spare seconds, minutes or most of all hours to spare before there was nothing left of me to give to accomplishing the project work.

bf on vivid purple orchid

Finally done!

I drove home late that night, grateful for completion and with a huge sense of accomplishment and gratitude.  Thankful (and thanking God while I drove home) that my health held up, and grateful for those who helped contribute to the project and everyone who came together to work with me to get it done.  Also, especially thankful for my husband, who quietly prayed for my health and success, and supported my need to focus on getting this important work commitment completed.

In the project’s aftermath, brain and body were in dire need of mental and physical rest.  I looked forward to the four-day weekend ahead, since I had well exceeded my normal work hours for the week, and had no plan to telecommute on Friday.  The resulting plan for the last three days?  No work!

Rest, Recovery and Fun with Origami Fashions


Restful Origami Crafts

Instead, the plan was “play and recover” mode, doing very little but making cups of herb tea and sitting around folding origami paper doll clothes.  Creating decorative napkin rinks for a sewing-themed women’s dinner at my church was extremely restful and fun.  I never touched my computer except to briefly check emails.


Unique Patterns for Napkin Rings

I thoroughly enjoyed my therapeutic role as doll clothes designer for two straight days while I recovered my mind, body and spirit.  The frivolous mind-resting craft “work” of folding and designing  paper-doll sized clothing couture was just what brain, body and “doctor” ordered!


One of a kind design therapy!

In reflection, this past ten days has been rather typical of life and lupus.

Sometimes, life, lupus and responsibilities take over and redirect us away from our great (and not so great) ideas, dreams and plans, and we must bend, rearrange life and face the truth of our human and lupus-imposed limits.

Along the way, I had to let go of my plans to do daily posts this month.  I was glad that I was able to get them done through and including the “POP” day on May 17th.  I really enjoyed doing my two-week series on the lupus bloggers!

It is no question that in the past week-plus, all my normal limits were exceeded.  Recovery had become an imperative!  We should always remember that we are made from a speck of mere dust — with a wisp of the precious breath of life breathed into us.

Case solved! The missing daily May Lupus Awareness posts

Women with lupus are at increased risk for loss of bone mass (osteoporosis) and are nearly five times more likely to experience a fracture.  Everyone with lupus should become knowledgeable about osteoporosis.

To learn more about this lupus fact, please read my post from  May 18, 2012.

Blood disorders such as anemia (too few red blood cells) are common in lupus, and can greatly affect the health of lupus patients.  A few blood related (hematological) conditions really matter in lupus.  Blood related issues are usually treated by hematologists, the specialists who know the most about helping patients with blood disorders.  A rheumatologist might ask a hematologist to help treat their lupus patient that has a blood disorder.

To learn more about this lupus fact, please read my post from  May 19, 2012.

People with lupus (and everyone else, too) should eat a nutritious, well-balanced, and varied diet that has plenty of fruits and vegetables, whole grains, and moderate amounts of fish and lean meats. When a patient is diagnosed with lupus, there is no specific recommended diet just for lupus.

To learn more about this lupus fact, please read my post from  May 20, 2012.

More than 80 percent of people with systemic lupus will experience some type of nervous system complication. Nervous system issues in lupus range from mild confusion or memory loss to strokes, seizures, and vision problems.

To learn more about this lupus fact, please read my post from  May 21, 2012.

The malar, or “butterfly” rash on the face is present in about one-third of those with systemic lupus. This flat, reddish rash across the bridge of the nose and cheeks, is often the only visible symptom of this form of lupus.

To learn more about this lupus fact, please read my post from  May 22, 2012.

As many as 40 percent of all people with lupus, and as many as two-thirds of all children with lupus, will develop kidney complications that require treatment.

To learn more about this lupus fact, please read my post from  May 23, 2012.

Only 10 percent of people with lupus will have a close relative who has lupus or may develop lupus, and only five percent of children born to a mother with lupus will develop the disease.

To learn more about this lupus fact, please read my post from  May 24, 2012.

About 40 percent of people who were originally diagnosed with cutaneous lupus, which affects only the skin, will go on to develop systemic lupus that can affect any organ in the body.

To learn more about this lupus fact, please read my post from  May 25, 2012.

Neonatal lupus is a rare condition that affects infants of women who have lupus. With proper testing, physicians can identify most at-risk mothers, and the infant can be successfully treated before or at birth.

To learn more about this lupus fact, please read my post from  May 26, 2012.

Today’s Lupus Fact

Lupus is not contagious and cannot be “given” to another person. Lupus is unlike and unrelated to HIV/AIDS or any other infectious disease. Once people realize this, they may want more information or to correct misconceptions about it.

To learn more about this lupus fact, please read my post from  May 27, 2012.


Comments on: "Lupus Adventurer and the Case of the Missing Daily Lupus Fact Posts" (1)

  1. Great to see your post and hear your news. I am so glad you got several fun days in to get your strength back. That is the most important, especially with your rigorous work schedule. Thanks for all the tips. Blessings. Leslie

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