One Patient's Positive Perspectives

Lupus Awareness Blog No. 15 – Dominate Your Diagnosis

Working on daughter’s quilt

Today I want to introduce you to a fellow lupus blogger, Leslie.

Leslie loves to quilt, do wool applique and make handmade cards.   She was diagnosed with systemic lupus over ten years ago and faced a “huge adjustment” from “being an independent person” and she began to realize how difficult it was for her to ask others for help.

She knew that she and others in her community with lupus needed support, and started facilitating an LFA lupus support group in Pennsylvania.

In Leslie’s search to stay out of the “rut” that chronic illness can easily put us into, she read “Being Sick Well” by Jeffrey H. Boyd, and gained a helpful perspective.

She describes a defining aspect of her outlook and blog vision in her first post.

“The only course of action is to keep the diagnosis under control-govern it, rule it, dominate it.  This is something we have to choose to do day by day sometimes moment by moment as we strive for autonomy from the diagnosis of chronic illness.”

“In this blog we will explore together strategies that have the potential to help us reclaim our lives, body, soul and spirit, from the diagnosis.”


Loves to quilt & applique

To find out more about Leslie’s interesting story, read a three-part biographical post series about her lupus journey.

  1. Part One: Pre-diagnosis: Rashes and Miscarriages
  2. Part Two: Diagnosis and Rheumatologist
  3. Part Three: Support Group, Work, Reynauds, Sjogrens and Faith

I trust you will find her blog an encouragement and refreshing mix of facts and faith as you join her on her journey.  Her blog is one of my “faves” and is always an uplifting read.

Lupus Truth No. 15 – The Four Types of Lupus

Coping with Lupus: There are four distinct forms of lupus.

Systemic lupus is the most common type of lupus. The other three forms of lupus are cutaneous, drug-induced and neonatal.

Drug-induced lupus and neonatal are not a sustained lupus, but systemic and cutaneous lupus are auto-immune conditions that tend to stay with a patient throughout their life, since there is no known cure yet for the latter two forms of lupus.

  1. Systemic lupus – organ and non-organ threatening
  2. Cutaneous lupus – non-systemic discoid lupus
  3. Drug-induced lupus – caused by certain medications known to produce temporary lupus
  4. Neonatal lupus – affecting newborns born to mothers with lupus

To learn more about this lupus fact, please read my post from  May 15, 2012.

Adobe Photoshop PDFPlan to POP — Put on Purple — for Lupus May 17th

Perhaps change to your great grape Juicy Couture purse to get ready to “POP” — Put on Purple — for Lupus this coming Friday, May 17th!


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