One Patient's Positive Perspectives

Lupus Awareness Blog No. 11 – Butterfly Lessons

Katina Rae Stapleton

Katina

Today we focus on a dynamic lupus blogger named Katina and her blog, Butterfly Lessons.   She was diagnosed with lupus at 14 years old, and after the tragic loss of three young friends, she decided “that no matter what lupus threw at me in the future, I was going to embrace life.” She has an outstanding support network, but talks about the wearisome experience of “being sick, tired, and sick-of-being-sick-and-tired.”  Explaining her positive outlook despite the troubles of lupus, she says, ” I could not do anything about having lupus, I could control whether or not I enjoyed life.”

Her personal life goals have “morphed” over the years due to the realities of living with lupus.  But lupus did not stop her from aspiring to high goals.  After high school, she went on to college, then earned a doctorate in American politics and now teaches courses on political communication in education research, overseeing several research programs and the training and development of doctoral students.

Katina is very involved with the Washington, DC chapter of the Lupus Foundation of America.  Her blog is her way of “sharing my story and providing helpful tips and lessons learned to others on the same road” and she hopes “that Butterfly Lessons touches your life in a positive (fabulous) way.”

Lupus Truth No. 11 – Lupus Discriminates!

Diagnosis and Treatment of Lupus: African Americans, Hispanics/Latinas, Asians and Pacific Islanders, and Native Americans are diagnosed with lupus two or three times more often than Caucasians; however, lupus affects people of all races and ethnicity.

The Lupus Foundation of America website is my data source for the charts, where it indicates that “Lupus is two to three times more prevalent among people of color, including African Americans, Hispanics/Latinos, Asians, and Native Americans.”  Unfortunately, the highest lupus incidence and mortality rates are among elderly black women.

This chart demonstrates the unfairness of lupus in the prevalence and incidence of lupus in women of color.

To learn more about this lupus fact, please read my post from  May 11, 2012.

Plan to POP — Put on Purple — for Lupus May 17th

Remember to pick out a purple polo shirt to get ready to “POP” — Put on Purple — for Lupus on Friday, May 17th!

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