One Patient's Positive Perspectives

Calla Lillies

Calla Lillies

Lupus Awareness Blog No. 8 – Daily Living with Lupus

Today, our attention turns to an established lupus blogger named Jennifer.  She describes herself as a 50-year-old wife, mother of three and grandmother of eight.  Her desire to promote lupus awareness motivates her to blog, so that “people will learn the harsh realities of the disease” and how it runs in families.

Jennifer’s blog backdrop is beautifully splashed with the vibrant purple colors of artist Carol Cavalaris’ drawings of butterflies and calla lilies.  [Cavalaris was the subject of a post on this blog a year ago.  She related to me that her sister-in-law with lupus was her inspiration for using butterflies in many of her works.  A successful professional graphic artist, you can read more about Carol Cavalaris in my July 7, 2012 post.]

welcomecoffeecupJennifer spreads the news about how lupus predominantly affects women, and shares how she hopes her “seven granddaughters and one grandson” never “have to go through what I have.” This thought about her young family members motivates her to blog, “to make people more aware, and to help find a cure” in her lifetime.

One caveat about her blog.  She warns, “please enter this blog with an open mind and know that I am writing from the heart about my own experience with the wolf (as lupus is called). There will be good days and bad days and I will try to share them with you.” It seems that she does a good job of doing just that.

My suggestion?  Click on over and do as she invites: “relax and enjoy the blog,” Daily Living with Lupus.

Lupus Truth No. 8 – Rheumatologists Treat Lupus

Diagnosis and Treatment of Lupus: Lupus is usually treated by rheumatologists, physicians who specializes in conditions affecting the joints and muscles.

Most lupus patients see several different doctors over several years before they finally get an accurate lupus diagnosis.

Advice for fellow patients...

Rheumatologists Treat Lupus

My family doctor, who finally suspected an autoimmune cause to my health problems, referred me to a rheumatologist who specialized in treatment of autoimmune diseases such as rheumatoid arthritis, gout, and lupus.

Having a single doctor treat all my symptoms helped in reaching my diagnosis, when he finally recognized the lupus might be the single cause of problems with many seemingly unconnected systems lupus was attacking.  In the couple of years before my lupus diagnosis, my family doctor treated me for recurring sinus infections, asthma/bronchitis, urinary infections, widespread severe rashes, inflamed joints, pleurisy, nasal and mouth ulcers, and mobility challenges from intense joint pain.


“Not Medically Responsible”

My doctor told me that continued treatment of these medical problems with recurring high dose steroids and pain killers was “not medically responsible.”  He continued to dig and search for answers the led to a referral to my rheumatologist and the beginning of treatment for lupus while a diagnosis was still being confirmed.  It still took another specialist conferring with my rheumatologist to finalize my pending lupus diagnosis.

To learn more about this lupus fact, please read my post from  May 8, 2012.

Plan to POP — Put on Purple — for Lupus May 17th

4445-POPWebBanner_728x90_BlueRemember to splash on the vibrant violet colors to get ready to “POP” — Put on Purple — for Lupus on Friday, May 17th!

Comments on: "Lupus Fact & Blog of the Day No. 8 – Daily Living with Lupus & Rheumatologists" (1)

  1. […] Lupus Fact & Blog of the Day No. 8 – Daily Living with Lupus & Rheumatologists ( […]

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