Today is October 4th, and exactly five weeks and five days after my first Benlysta infusion for my lupus. Even though I have had some thoroughly exhausting activity over the past week, it seems many of the recent mornings are still showing a slight glimmer of improvement. It may be too soon to tell, and this morning is clearly a great flaring exception, but I have been encouraged a little by awakening with what seems like slightly lighter symptoms followed by a little bit quicker and more complete morning recovery from lupus fog, CNS difficulties, joint stiffness and pain.
However, this morning dawned with an exceptionally acute flare, most likely triggered by last night’s lack of sleep from neuropathy pain. Deep bone pain is in my fingers and wrists, feet and knees and the long bones of all four extremities. However, while taking this morning off from work to help fight and turn around the effects of this flare, I am choosing to remember yesterday.
Yesterday was one of my most productive work days in weeks. Morning fog was lighter and lifted a little more completely than normal. It seemed as the day progressed everything inside me was clicking along like “clock work” and I got great things accomplished on my job. I am choosing to focus on the recent slightly better mornings, and consider this morning as a mere stubbed toe in the ongoing battle against my lupus!
My prayers are that Benlysta will keep doing its thing and that it will soon make a big difference.