While trying to do all the good things for the past three months necessary to turn around the latest flare, its was hard to accept that remission was really ending. In recent communication between patient, rheumatologist and CNP, all agreed that a long slow lupus flare continues unabated. What’s next? Hopes for clinical trial or insurance company approval of more Rituxan infusions.
Its been almost 5 years, and there are no complaints in this corner. Having then already failed Methotrexate and Imuran after taking them for almost 10 years, then contraindicated by lupus liver involvement, Ritxan was the next best hope.
Thankfully, for the last five years, a simply amazing lupus improvement persisted! Five years of feeling mostly well after 25 years of feeling mostly miserable was welcome change! No complaints here about remission not lasting forever. Thinking every day, “if this is what 50 feels like, then what is everyone complaining about.”
If its time to do the biologic drug again, bring it on!
Totally ready for more Rituxan, and now just waiting for the call it’s been approved…