Lupus brings on many challenges and many victories. Today I am sitting in the cancer infusion center at the hospital getting my tenth Benlysta infusion, and am pondering the good, the bad and the ugly of lupus. First, the good – Five good things and small victories that keep me going. An outstanding support and [...]
Today is Easter Sunday! My thoughts are focused completely away from my Lupus, and onto the silent conversation going on today in my heart. Easter is not originally about bunny rabbits and Easter eggs, although they are certainly a colorful and fun part of many modern-day Easter observances. Today, I am looking forward to an [...]
Inspiration and strength of character necessary to fight an auto-immune illness come from many sources. My most powerful and trans-formative resource for healthy psychological and spiritual perspectives are found in the Hebrew and Christian scriptures of the Bible. Many passages and quotations strengthen my heart by encouraging, challenging or even instructing me to better understand [...]
Lupus patients with CNS involvement often have trouble with short-term memory, and can find learning new information especially challenging. For me, it took over two years of study and two examinations before receiving the good news today that I passed a professional certification exam. A heartwarming “Congratulations!” opened the letter I received today announcing the [...]
Today was my fourth infusion of Benlysta for Lupus, since they began in late August. It has been one month since the last infusion, and I am beginning to think I may be just starting to feel the benefits. The medical literature about Benlysta indicates the earliest benefits may be noticed as soon as 8 [...]
Well, the reports that Benlysta works slowly have been validated in my experience. While there seems to be a hint of lighter lupus symptoms, overall changes have been slight or perhaps coincidental so far. My general health and lupus has been up and down, responding as usual to recent stressful events and exhaustion with its [...]
Today is October 4th, and exactly five weeks and five days after my first Benlysta infusion for my lupus. Even though I have had some thoroughly exhausting activity over the past week, it seems many of the recent mornings are still showing a slight glimmer of improvement. It may be too soon to tell, and [...]
I sit here eating dinner, contemplating tomorrow’s big test, wondering if I’ll pass or fail. I’ll plan to give it my best. Three more hours to go until “light’s out!” for mental rest, then an early start tomorrow, and a flight out toward the west. Flash cards in transit, a prayer for God’s help, and [...]
This morning will be filled with telecommuting, followed by heading out at noon for the hospital where I will receive my 2nd Benlysta infusion. So far, so good. After a few days, the short passing moments of dizziness stopped, and after a week the short shooting “zinger” headaches went away. These were small issues so [...]
It is no secret that lupus and mornings are somewhat incompatible. If we could simply skip them, most of us lupus patients would opt out. However, mornings just have a habit of returning on a daily basis! There is no way out of them but to sleep or muddle through them. However, most working people [...]
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