One Patient's Positive Perspectives

Posts tagged ‘music’

Lupus and the top ten essentials of life

There are many essential things every person and lupus patient needs for health and a balanced life. These critical things fall into two major categories: the things that cost money to get, and the most essential things that are priceless that cannot be bought.  For a healthy person not facing the challenges of lupus or [...]

Lupus and my theme song – singing in the rain!

If there were one well-known song that would best be the theme song for this blog, it might well be “Singing in the Rain.”  Click above to watch the You-Tube video of the original Gene Kelly rendition of this fun-filled ditty.  This was a favorite of my mother and I as we would walk arm [...]

Lupus and a letter to my younger self

Lupus at sweet sixteen, but not yet diagnosed.  You don’t know this yet, but in a few years you will be a young wife and mother, and will finally be diagnosed with lupus.  However, you will continue to have mysterious symptoms for another ten years before a doctor finally asks the right questions, and runs [...]

A heart-felt conversation, but not about Lupus today!

Today is Easter Sunday!  My thoughts are focused completely away from my Lupus, and onto the silent conversation going on today in my heart.  Easter is not originally about bunny rabbits and Easter eggs, although they are certainly a colorful and fun part of many modern-day Easter observances.  Today, I am looking forward to an [...]

Lupus, singing and a visiting hummingbird

After any illness, it is hard to get back into the swing of things and resume a normal schedule. Sometimes this is due to lingering symptoms and post illness exhaustion, as well as adjusting to the shift back into active mode. With lupus, the challenge for me is knowing how to find the right speed [...]

Lupus work-life balance in special life events and celebrations

Life’s special events and celebrations present special challenges to lupus patients.  These special family times and events, such as weddings, birthdays, anniversaries and holidays can tax the limited resources of the most balanced person, let alone a person facing extra challenges from a chronic auto-immune disease, like lupus.  Intentionally acknowledging physical and emotional limits, and [...]

CNS lupus, butterflies and a minor milestone piano performance

Music and lupus goals Over the past couple of years, learning to play the piano has been a personal, musical and spiritual goal woven throughout the activities of each day, with a purpose.  My husband is an accomplished church pianist, and music performance is focal point of both of our lives.   We sing solos [...]

Lupus, lutes and a lovely afternoon at the MIM

Out of town company meant a wonderful opportunity to visit the new international Musical Instrument Museum (the MIM)  near the border of the Desert Ridge area of northeast Phoenix and north Scottsdale.  Our lovely afternoon started at the museum café, where gourmet chefs prepared our delightful healthy lunch.  Our meal included an amazing roast chicken [...]

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