Christmas shopping is a funny topic in April, but as I was thinking about firsts with lupus, I realized that my first rolling shopping mall trip was one of my most memorable lupus firsts. Many years ago, when Christmas was approaching, I had to face the fact that shopping and the mall had been my [...]
Much of the world moves at a breath-taking pace, and once that rapidness energized me. Exhilarating, stimulating, exciting, competitive, challenging — bring it on! Like most type “A” over-achievers, perfection and competition drove me to push harder and longer toward excellence. It seemed I was ever raising my goal to do better and accomplish more. Trying [...]
Yesterday, I had the distinct pleasure of reading a refreshing start-up lupus blog. Rebecca, at the young age of 23, has captured the art of sharing her recent health experiences with captivating skill, spunk and energy. Her new blog is a must-read for any newly diagnosed lupus patient, and quite heartening for any one of [...]
Let’s have a yard sale! What a wonderful thought, especially for the forgetful lupus patient, who has conveniently put out of her failing short-term memory any recollection of the true magnitude of a full-blown garage sale experience! Yet, that is exactly what I did. My daughter, mother-in-law and sister-in-law all joined me in a two-day [...]
Today was my fourth infusion of Benlysta for Lupus, since they began in late August. It has been one month since the last infusion, and I am beginning to think I may be just starting to feel the benefits. The medical literature about Benlysta indicates the earliest benefits may be noticed as soon as 8 [...]
Life’s special events and celebrations present special challenges to lupus patients. These special family times and events, such as weddings, birthdays, anniversaries and holidays can tax the limited resources of the most balanced person, let alone a person facing extra challenges from a chronic auto-immune disease, like lupus. Intentionally acknowledging physical and emotional limits, and [...]
Long full busy work days for many lupus patients can end in evenings filled with exhaustion and fatigue. It seems activity and responsibility don’t really slow down to accommodate this lupus patient, so the “break” she keeps wistfully hoping will be just around the next corner, just isn’t. Recent days at home and work have [...]
Any adventure can be somewhat like reading an exciting novel, and each page holds something new and unread as you turn it. What will it be, will it inspire, excite, frighten, amuse, confuse or even bore me? I will never know unless my thumb and fingertip grasp the corner of that page, rubbing as I [...]
How much sun is too much for a lupus patient? I have heard that 15 minutes per day is pretty much the maximum daily sun any wise lupus patient should absorb. However, what about little snippets of sunshine, spread out throughout a single day? Do they count? I recently learned the hard way how important [...]
Out of town company meant a wonderful opportunity to visit the new international Musical Instrument Museum (the MIM) near the border of the Desert Ridge area of northeast Phoenix and north Scottsdale. Our lovely afternoon started at the museum café, where gourmet chefs prepared our delightful healthy lunch. Our meal included an amazing roast chicken [...]
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