Living with Lupus: About 40 percent of people who were originally diagnosed with cutaneous lupus, which affects only the skin, will go on to develop systemic lupus that can affect any organ in the body. Has cutaneous lupus become more than skin deep? One of the most difficult things for a patient diagnosed with cutaneous [...]
Coping with Lupus: Blood disorders such as anemia (too few red blood cells) are common in lupus, and can greatly affect the health of lupus patients. A few blood related (hematological) conditions really matter in lupus. Blood related issues are usually treated by hematologists, the specialists who know the most about helping patients with blood [...]
Coping with Lupus: People with lupus are usually encouraged to engage in appropriate daily exercise to keep up muscle and bone strength. Exercise is not intuitive for those with auto-immune health challenges like lupus, rheumatoid arthritis or fibromyalgia. Waking up each morning with joint stiffness and pain, the first thought on my mind is definitely [...]
As one of the last couple of posts in the thirty-day health writer’s challenge, it has been suggested I should try to tell my lupus story, with extreme brevity, short and sweet, as a six-sentence story. In this day of micro-blogging, brevity is said to be a skill worth honing, so this challenge may be [...]
There are some things about lupus that really take getting used to. For me, it was hard to accept I would have to take medication every day for the rest of my life. I had always been a purist when it came to putting foreign substances in my body, and chaffed at the idea of [...]
Lupus at sweet sixteen, but not yet diagnosed. You don’t know this yet, but in a few years you will be a young wife and mother, and will finally be diagnosed with lupus. However, you will continue to have mysterious symptoms for another ten years before a doctor finally asks the right questions, and runs [...]
Last week, it was a relief to finally receive a twice postponed Benlysta infusion for my lupus. Also, today marks one week into the April Health Writer’s 30 day challenge, and over 7 months (32 weeks) into my Benlysta treatments. Happy day #225 with Benlysta. Today is an important milestone, simply because I am declaring [...]
One-hundred years from now, what might people in the next century conclude from a time-capsule filled with items related to my lupus and health adventures from today? My capsule would probably contain several empty pill bottles, a tube of analgesic ointment, a wide-brimmed sun hat, the handicapped parking permit placard from my car, several physicians’ [...]
Sitting in bed for the sixth day with a bad case of bronchitis, the most remote thought in my mind was getting up to exercise for my health and lupus. Scanning through my emails on my Nook tablet, I started reading the latest newsletter from Arthritis Health in Scottsdale, Arizona, and was challenged to check [...]
Well, here we sit again with yet another case of bronchitis. The good news is that it is not pneumonia like my husband has now. The bad news is that it is bad enough to have me stuck in bed fighting a never-ending, ever-deepening cough. My husband had the distinct joy of getting sick first. [...]
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