One Patient's Positive Perspectives

Posts tagged ‘diagnosis’

Prognosis and Hope: Lupus Fact #31 – Lupus research lengthens lives!

Prognosis and Hope: Today, people with lupus are leading healthier lives and living longer than at any time in history, thanks to researchers who continue to discover more about the underlying science of the immune system. When I was first diagnosed with lupus almost twenty years ago, this was not the case, and prognosis that [...]

Living with Lupus: Fact #25 – Cutaneous lupus may someday be more than skin deep

Living with Lupus: About 40 percent of people who were originally diagnosed with cutaneous lupus, which affects only the skin, will go on to develop systemic lupus that can affect any organ in the body. Has cutaneous lupus become more than skin deep? One of the most difficult things for a patient diagnosed with cutaneous [...]

Diagnosis and Treatment of Lupus: Fact #11 – Lupus racially discriminates!

Diagnosis and Treatment of Lupus:  African Americans, Hispanics/Latinas, Asians and Pacific Islanders, and Native Americans are diagnosed with lupus two or three times more often than Caucasians; however, lupus affects people of all races and ethnicity. The Lupus Foundation of America website is my data source for the charts, where it indicates that “Lupus is [...]

Diagnosis and Treatment Lupus Fact #6 – A diagnosis often takes years

Diagnosis and Treatment: Many symptoms of lupus mimic those of other illnesses, and symptoms can come and go over time, which makes diagnosis more difficult. Because lupus can attack nearly any system of the body at any given time, lupus can seem to be a number of unconnected health problems within the same patient. Lupus [...]

My lupus adventure, short and sweet

As one of the last couple of posts in the thirty-day health writer’s challenge, it has been suggested I should try to tell my lupus story, with extreme brevity, short and sweet, as a six-sentence story.  In this day of micro-blogging, brevity is said to be a skill worth honing, so this challenge may be [...]

Lupus and a letter to my younger self

Lupus at sweet sixteen, but not yet diagnosed.  You don’t know this yet, but in a few years you will be a young wife and mother, and will finally be diagnosed with lupus.  However, you will continue to have mysterious symptoms for another ten years before a doctor finally asks the right questions, and runs [...]

New Lupus Diagnosis? Keep Calm and Carry On, Lupus is Manageable!

Today the theme for the 30 day Health Writer’s challenge focuses on an important message that needs to be shared about lupus.  Those who are newly diagnosed with Lupus often are very shaken emotionally, and often very unsure what the diagnosis will mean to their life.  For me, it was a great relief to finally [...]

Lupus, and a new blogger’s description of overwhelming fatigue

Yesterday, I had the distinct pleasure of reading a refreshing start-up lupus blog. Rebecca, at the young age of 23, has captured the art of sharing her recent health experiences with captivating skill, spunk and energy.  Her new blog is a must-read for any newly diagnosed lupus patient, and quite heartening for any one of [...]

Lupus diagnosis in men – Dr. House, “this time it is lupus”

It usually takes several years and several doctors for the average lupus patient to get an accurate diagnosis. Since only 10% of lupus patients are men, it must be 10 times as difficult for them to get an accurate diagnosis.  1 out of every 150 people have lupus on the average.  That means that only [...]

Lupus awareness: Someone we know has lupus!

Someone you know has lupus!  A few years ago, the Lupus Foundation of America launched a wonderful awareness campaign using this slogan.   The statement was featured on a hauntingly beautiful poster of a young woman’s face, surrounded in a field of blue-green and butterflies.  The campaign very successfully raised awareness about lupus and the 1.5 million Americans who suffer [...]

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