One Patient's Positive Perspectives

General Comments


Comments on: "General Comments" (14)

  1. Becky Bravo said:

    When I wasn’t looking, you brushed my fingertips. I turned to see but you were gone…I closed my eyes for a second in time and closed my eyes again. when I wasn’t looking, you grabbed my hand…I looked to see, and there was nothing. I was laughing at a party and you wrapped your arms around me,I could not break free…You squeezed tighter and tighter till you took my breath away……and then you were gone again. I told others of your grip on me and they searched all around me, and saw nothing. Then one day you showed yourself, the one who took my breathe away, the one who gripped me so hard, I couldn’t move in your presence. Your face is ugly, your being can’t live within it’s self.. then others saw you, who you were…you are Lupus, you are my enemy, you are my foe…….I shall defeat you, one day you shall never hold me again…

  2. Thanks so much for finding my blog so I could find yours. :) Following back! I also added your blog to links on my blog. I look forward to reading about your Benlysta adventures as you’re far ahead of me. TY and God bless you abundantly!

  3. adventurer; could you contact me at anowlin@mac.com? I need to pick your brain!

  4. Adventurer, could you contact me? Annie anowlin@mac.com

  5. Hello Ms. Lupus Adventurer – thank you for taking the time to share your story, excellent facts, and resources. Your message is vital to all those impacted by this disease and provides hope, messages of faith, and education to all. Stay strong!

    • lupusadventurer said:

      Thank you for your kind words and for visiting my blog! Have a great day. :-)

  6. I’m sorry it took me this long to check out your blog–but I’m glad I did! You provide so much information and links to great websites and blogs, that I just wanted to thank you for being a great resource. Also, I’m intensely interested in how Benlysta works for you, so thank you for sharing your experiences with it. One last note, I added you to my blog roll, and then I noticed you’d already added me–that was such a nice surprise!

  7. You have an inspiring blog. Thanks for subscribing. It’s lovely to meet you here :)

  8. lupusadventurer said:

    I am honored to be added to your blog roll! Thanks :-)

  9. Thank you so much, i enjoyed your Blog so much I’ve added the link into mine. I hope you don’t mind.

  10. Lupus Adventurer said:

    This blog is having some major technical difficulties. We are working with Healthblogs.org “under the hood” to try to resolve a problem blocking my access to administrate my blog.

    I am posting today as a “visitor” but hope to be able to soon be writing new blog posts again, as soon as the technical problem is resolved.

    Thanks for coming to visit my blog, and your interest in learning more about lupus! Have a great day :-)

  11. SLE is one of several diseases known as “the great imitators” because it often mimics or is mistaken for other illnesses.[6] SLE is a classical item in differential diagnosis,[2] because SLE symptoms are can go unpredictable for years.

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