Lupus has been an unwelcome companion in my health journey for many, many years now. Over time, my innate enthusiasm for greeting each morning was gradually eroded, and even more so as my lupus marched seemingly ever on in its escalating attack against connective tissues. However, after many cycles of ups and downs, an irrefutable [...]
After a trip, there are two ways of unpacking. If I get home early and am not exhausted, my suitcases nearly unpack themselves. Clothes nearly fold themselves and fall neatly into my drawers, others seemingly hang themselves up, and the soiled ones crawl over and jump obediently into my open hamper. The whole routine has [...]
A visitor to my blog provided information today about a very interesting UV related new product website. While usually extremely sparing on endorsement of specific products, this new product fascinated me in light of lupus sun sensitivity. The Sunny Beadz jewelry product line was started in 2011 and was recently featured in gift baskets provided [...]
Today marks the 25th week since the beginning of Benlysta infusions for my lupus, and this morning I will receive the eighth treatment. Some of the reserve in my enthusiasm from a few weeks ago has ebbed, and I am feeling especially well right now. My lupus symptoms have quieted considerably, even during a recent [...]
During my trip my lupus was mostly quiet, and only a couple of mornings had significant symptoms. It was a blessing to get plenty of rest, and even take naps in the afternoon when my grandchildren and their mommy were sleeping. I came home feeling refreshed and rejuvenated. Just what the doctor ordered! A few [...]
This morning, Lupus Adventurer boards an airplane and flies out to visit her son, daughter-in-law and 3.99 grandchildren for a week. Any day, her daughter-in-law is expecting the birth of the tiniest new baby girl in our family. Lupus Adventurer will be hugging her grandchildren at every chance while visiting with family in an internet-free [...]
Benlysta infusion treatments for my lupus have turned down a slightly bumpy road. So far, Benlysta has seemed to produce gradual, but not dramatic, improvements in my lupus symptoms. However, bronchitis set into my respiratory system within 48 hours of my last infusion, and this is not the first case of bronchitis. Additionally, over the [...]
The Lupus Foundation of America has announced the new dates in the 2012 – Lupus: Learn from the Experts series educational seminars about living with lupus. In 2011, this series of online seminars featured several outstanding speakers from among the world’s leading lupus experts and provided much-needed education about lupus. The new 2012 seminars are [...]
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