One Patient's Positive Perspectives

Archive for January, 2012

Lupus post-infusion infection, steroids and the E.B. effect

Friday morning started with a 20 minute drive on the freeway to visit my rheumatologist, and ended with a stop for burgers, soda and fries.  In between, there were conversations with medical staff, a nice long visit with my doctor, and the administration of a hefty Kenalog and Celestone steroid injection.  A lupus flare had [...]

Lupus, and thanking God for another year of life!

This weekend I read a moving account of a young college senior with lupus, Ariane Patterson, who suffered a fatal heart attack last week in the middle of her college class. It was her 21st birthday that day, and seven hours earlier, she sent out a Twitter message to all of her friends, “Thank you [...]

Lupus and Benlysta after 21 weeks

Yesterday brought Benlysta infusion number seven for my lupus, and after twenty-one weeks, this new biologic drug is producing encouraging effects in controlling my lupus symptoms.  Although the changes and improvements have not been extremely dramatic, my symptoms have been consistently decreasing and successful partial reduction of daily prednisone dose was achieved. When my doctor [...]

Lupus awareness, learning adventures, and a published article

Today brought a very special honor as the national publication of my professional certifying association published my article that included an expanded discussion outlined by my acronym describing “LEARNERS” (first published here in this blog on November 1, 2011.)  See,  Lupus, and adventures in learning. Their editorial staff contacted me a couple of weeks ago [...]

Lupus: Learning and Living Educational Symposium in Phoenix, AZ January 21, 2012

An exciting outreach for Lupus patients is coming to Phoenix this month.  The Lupus Foundation of America, Inc. (LFA) is hosting a free educational symposium for people with lupus, their families and friends on Saturday, January 21, 2012 in Phoenix, AZ, just two weeks from today.  The upcoming educational symposium is very important event for [...]

2011 in review

The WordPress.com stats helper monkeys prepared a 2011 annual report for this blog. Here’s an excerpt: A San Francisco cable car holds 60 people. This blog was viewed about 3,400 times in 2011. If it were a cable car, it would take about 57 trips to carry that many people. Click here to see the [...]

Lupus, and a New Year’s Goals and Adventures Ahead

This week is the beginning of a New Year’s adventure!  Looking to the year ahead, most lupus patients, like me, are clueless about what to expect.  Lupus differs in its symptoms and severity from one patient to the next, and from time to time within the same patient. “The one predictable thing about lupus, is [...]

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